Mayo Clinic's PASAGE Interview Study: Perspectives of the Autism Community on Genetic Therapies

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Mayo Clinic's PASAGE Interview Study: Perspectives of the Autism Community on Genetic Therapies

Participate in Research

Application Summary

We are a team of bioethicists and social science researchers studying the possible impact on families and communities of genetic therapies that might become available in the future. We are inviting people with lived experience of Autism to talk with us about their views towards genetic therapies. We know people have very different feelings about potential treatments; no matter how you feel, we are interested in hearing from you. This interview study is funded by the National Institutes of Health and is not affiliated with any commercial or pharmaceutical company. This is a qualitative research study and does not offer any medical intervention.If you are interested in learning more, please email our study contact or fill out the contact form on our website www.pasage-study.org where you can find more information about the study.

Study Inclusion Criteria

18 years or older, US citizen, have lived experience (individual or family member) with autism

Study Exclusion Criteria

Younger than 18 years old, not a US citizen, has no lived experience with autism

 

Study Type: Phone/Skype interview

Principal investigator:

Dr. Megan Allyse, allyse.megan@mayo.edu, 904-953-6415

Study Contact:

Kirsten Riggan riggan.kirsten@mayo.edu 507-284-2046
Jane Yap yap.jane@mayo.edu 507-538-5254

Recruitment Flyer

Study Link

Age Range: Parent/Caregiver of Infants Parent/Caregiver of Children Parent/Caregiver of Adolescents Parent/Caregiver of Young Adults Parent/Caregiver of Adults Parent/Caregiver of All Ages Young Adults: 18-29 years Adults: 30+ years

Time Commitment per visit:

<=1 hour

Recruitment Period:

4/4/2024 - 4/4/2025

Gender for Study:

Any