Mayo Clinic's PASAGE Interview Study: Perspectives of the Autism Community on Genetic Therapies
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Mayo Clinic's PASAGE Interview Study: Perspectives of the Autism Community on Genetic Therapies
Participate in Research
Application Summary
We are a team of bioethicists and social science researchers studying the possible impact on families and communities of genetic therapies that might become available in the future. We are inviting people with lived experience of Autism to talk with us about their views towards genetic therapies. We know people have very different feelings about potential treatments; no matter how you feel, we are interested in hearing from you. This interview study is funded by the National Institutes of Health and is not affiliated with any commercial or pharmaceutical company. This is a qualitative research study and does not offer any medical intervention.If you are interested in learning more, please email our study contact or fill out the contact form on our website www.pasage-study.org where you can find more information about the study.
Study Inclusion Criteria
18 years or older, US citizen, have lived experience (individual or family member) with autism
Study Exclusion Criteria
Younger than 18 years old, not a US citizen, has no lived experience with autism
Study Type: Phone/Skype interview
Principal investigator:
Dr. Megan Allyse, allyse.megan@mayo.edu, 904-953-6415
Study Contact:
Kirsten Riggan riggan.kirsten@mayo.edu 507-284-2046
Jane Yap yap.jane@mayo.edu 507-538-5254
Jane Yap yap.jane@mayo.edu 507-538-5254
Age Range: Parent/Caregiver of Infants Parent/Caregiver of Children Parent/Caregiver of Adolescents Parent/Caregiver of Young Adults Parent/Caregiver of Adults Parent/Caregiver of All Ages Young Adults: 18-29 years Adults: 30+ years
Time Commitment per visit:
<=1 hour
Recruitment Period:
4/4/2024 - 4/4/2025
Gender for Study:
Any