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Autism Speaks executive Val Paradiz appointed to federal autism committee… U.S. Department of Health and Human Services announced today that Valerie Paradiz, Ph.D., vice president of services and supports at Autism Speaks, has been appointed as one of 20 new as well as two returning public members of the Interagency Autism Coordinating Committee (IACC), an advisory group on federal autism activities. Along with federal members of the committee from key agencies and departments serving … IACC plays a critical role in deciding where our federal priorities should lie in funding autism services and research to support autistic people of all ages,” said Dr. Paradiz. “I look forward to working with other members of the committee to …
Autism Speaks statement in response to reports of surge in COVID-19 cases among people with disabilities… swift action to respond to the immediate needs of people with autism and their families – through advocacy, services and supports, resources and direct assistance. We are deeply concerned by reports of increased incidence of COVID-19 among people with disabilities, particularly in group homes, as reported by the New York Times and other news outlets. In response to news of the rapid spread of COVID-19 … but reduce the risk of injury, neglect, abuse and death for residents at overburdened facilities. Congress must do more to support the disability community in the next COVID-19 relief bill. It is crucial that the bill include additional funds for …
Respite Care… services can be available to families through provider agencies with trained staff or through a more informal network of support.  Find more helpful information about respite models as well as a respite locator from the National Respite Network … to families. The RAISE Family Caregivers Act , signed into law in January 2018, will create a national strategy for supporting caregivers. Respite options for family caregivers will be one piece of the considered strategy and solution. How … role in managing the specific behaviors of the individual with autism. How will the respite worker support the person in a group setting? You may want a worker to accompany your family member to a social group, or an afterschool program. The …
Why a mother-daughter running duo teamed up for Autism Speaks… Christel, Iowa Wesleyan ’88, decided to check out different race options online. She saw that through Disney you can run in support of various charities, including Autism Speaks. Christel and her daughter Samantha, Iowa Wesleyan ’14, decided to … signed up for the races six months in advance and began training 16 weeks before the race. “Everyone has so many different groups and causes to support, so it was hard for me to ask people to give to another cause. Putting myself out there on social media and asking …
2022 Chip In Casino Night and After Dark Bash… ASYP members, and now - casino gaming! Who are Autism Speaks Young Professionals? Autism Speaks Young Professionals is a group that works to support Autism Speaks mission by raising funds and awareness, while also connecting young professionals in Chicago. Founded …
Finding Information on Autism-Related Genes … 15q duplication syndrome, copy number variation Pheland-McDermid syndrome and DiGeorge syndrome . A number of advocacy groups and organizations provide information, parent and child support, research funds and services for those affected by these specific genetic disorders. (See list below.) … aware of an organization that specifically addresses Xp22.31 deletions. There are, however, a few Yahoo and Facebook parent support groups for Xp22.31 deletions. The National Society for Genetic Counselors provides a platform for finding genetic …
South Florida Executive Leadership Council (ELC)… an inclusive world for all individuals with autism throughout their lifespan. We do this through advocacy, services, supports, research and innovation, and advances in care for autistic individuals and their families. Engaged and committed … Sorondo, Brand and Marketing Consultant Armando Ureña, Senior Partner, Managing Director at Ureña Wealth Management Group, Snowden Lane Partners Milton Vescovacci* , Shareholder at Gunster **Autism Speaks South Florida Area ELC Chair * …
Study finds higher rates of gender diversity among autistic individuals… can improve their quality of life,” said Thomas W. Frazier, Ph.D., chief science officer at Autism Speaks. “By looking at groups of autistic people across several different types of data collected, this study gives us a more realistic idea of how … should focus on how to better meet their healthcare needs and what medical and mental health providers can do to best support their patients.” Read more about how parents can support autistic, gender-diverse youth in this Got Questions? article from Dr. Eric Butter, a clinician at the Division of …
Things to Look For in Your Child's Team… quite complex, so it is helpful to take a broad approach when evaluating concerns, and deciding how to provide appropriate support. In order to meet their various needs, many people with autism, especially those with challenging behaviors, need a … have you worked collaboratively in the past? “I have to say, we were lucky enough from the beginning to have assembled a group of fine people who had the very best intentions of helping my son Eli. But a few months into his preschool year, after … the provider’s experience by asking at his office, or by connecting with school or agency staff, other parents, or local support groups for suggestions and recommendations. What is your experience in working with individuals with autism? This …
Autism Speaks opens applications for Local Impact Grants… enhancing their lives today and accelerating a spectrum of solutions for tomorrow. Autism Speaks’ Local Impact Grants support a variety of programs, including: Education and training programs for autistic individuals Recreation, athletic and … services, including vocational training, life skills, residential services and others Assistance for sensory equipment and supportive technology Summer camp scholarships for financially disadvantaged people with autism Since 2013, Autism Speaks … therapists and peers. Timeline:   April 15:  Application opens   May 16:  Application closes   May 23 – June 17:  A group of independent evaluators from across the country reviews and scores applications  June 27 – July 8:  Review …