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Autism in the Black community… any family, but for Black families, the process often comes with additional, unique obstacles. Thanks to public awareness and outreach campaigns in underserved communities, the most recent CDC autism prevalence report shows that the prevalence of autism in the Black community is—for the first time—higher than in … underrepresented communities. Overcoming barriers Systemic biases in healthcare and cultural misconceptions about who can and cannot be autistic contribute to delays in diagnosis for Black children. Historically, autism was thought to …
Autism spectrum disorder (ASD)… (ASD), refers to a broad range of conditions characterized by challenges with social skills, repetitive behaviors, speech and nonverbal communication. According to the Centers for Disease Control, autism affects an estimated 1 in 36 children … and sleep disorders Anybody can be autistic, regardless of sex, age, race or ethnicity. However, research from the CDC says that boys get diagnosed with autism four times more often than girls. According to the DSM-5-TR, the diagnostic … by doctors, often leading to underdiagnosis or misdiagnosis. Getting a diagnosis is also harder for autistic adults, who often learn to “mask”, or hide, their autism symptoms. Autism is a lifelong condition, and an autistic person’s needs, …
US Senate passes the Autism CARES Act of 2024, sending it back to House for final passage… advancing the critical legislation back to the House of Representatives for final consideration. The bill, which renews and expands support for federal autism programs, underscores the federal government’s commitment to addressing the growing … key programs under the Health Resources and Services Administration (HRSA), the Centers for Disease Control and Prevention (CDC), and the National Institutes of Health (NIH). These programs enhance the quality of life of autistic individuals and … pediatrician workforce, mental health of autistic people and communication supports particularly for autistic individuals who may be unable or limited in using speech. The Autism CARES Act of 2024 now returns to the House of Representatives for …
National survey of parents identifies 1 in 40 children with autism … published analysis of the 2016 National Survey of Children’s Health . The national survey, led by the U.S. Health Resources and Services Administration, involved questionnaires completed by more than 50,000 parents of children (birth to 17 years … higher than the c urrent official estimate of 1 in 59 , published by the Centers for Disease Control and Prevention (CDC) earlier this year. The difference in prevalence rates is likely due to differences in methods, says Autism Speaks Chief … review of medical and school records for 8-year-olds at sampling sites across the country. It can miss children with autism who aren’t receiving services. It also reflects differences in record keeping among states. Persistent obstacles to care …
Autism Speaks celebrates advancement of Autism CARES Act of 2024… Today, the U.S. House Energy and Commerce Committee passed the Autism Collaboration, Accountability, Research, Education, and Support (CARES) Act of 2024 … of Health ( NIH ), Health Resources and Services Administration ( HRSA ) and Centers for Disease Control and Prevention ( CDC ). Despite the tremendous progress in autism understanding, health care, and evidence-based services and supports that … would all have not been possible without the leadership of Autism Caucus co-chairs, Reps. Chris Smith and Henry Cuellar, who not only introduced this legislation but worked hard to ensure that vital enhancements were included in the bill. We …
Autism Speaks applauds reintroduction of Autism Family Caregivers Act… training pilot sites in at least 15 states. These sites may include nonprofit organizations, community health centers and/or hospital systems that would provide caregivers with evidence-based strategies to improve social communication and … with autism and other developmental disabilities in underserved communities while also supporting the wellbeing of those who care for them." This legislation comes just a month after the Centers for Disease Control and Prevention (CDC) released an update on autism prevalence in the United States, reporting an increase in prevalence to 1 in 36 children, …
2021 Advocacy Highlights… From Washington, D.C., to state capital cities and Zoom meetings with advocates across the country, our Advocacy Team pursued policy solutions throughout this year that … A $10 million increase in funding for autism-related activities at the Centers for Disease Control and Prevention (CDC). This would be the first increase in CDC funding for autism-related activities in 10 years. A substantial increase in … in HCBS as part of the Build Back Better Act, alongside additional funding to increase the number of direct support workers who provide in-home and community-based supports . This was a milestone first step and as Congress continues to work to find …
A letter from Autism Speaks CEO… clear vision: a world in which all people with autism can reach their full potential. In this world, access to information and resources is a universal right, untethered to geographical or societal boundaries. People with autism — and the family and friends who stand alongside them — are supported through every stage of life. Where total acceptance of autistic people — beyond … they are writers, engineers, IT specialists, graphic designers – and the heart of our organization. Recently, the CDC reported an increase in the prevalence of autism from 1 in 44 children to 1 in 36 children , including increased …
Making progress toward the dream: Autism in the Black community… Janet Williams, mom to a son on the spectrum and outreach director for Autism Speaks, shares her thoughts on breaking down barriers to autism diagnosis and care and the … faced with the reality that with our dreams may come additional barriers. The Centers for Disease Control and Prevention (CDC) estimates that autism spectrum disorder affects 1 in 59 children in the United States. Among those children, Black … done. Regardless of ethnicity, every person with autism experiences a unique set of strengths and challenges, as do those who care for and support them. But research tells us that Black people may experience greater barriers and stigmas …
2022 Advocacy Highlights… to state capitals, together with advocates across the country, our team works to protect the rights of autistic individuals and advocate for investments in autism programs that pay dividends for our community. Throughout this year, we pursued … wins include: $5 million increase to expand autism-related activities at the Centers for Disease Control and Prevention (CDC) – the first increase in CDC funding for autism-related activities in 10 years A call on the NIH to invest part of its … regarding registered behavior technicians (RBTs), with the goal of increasing the qualified applicant pool of those who can assist with providing ABA services. Improving transition planning and special education The Consolidated …