State advocacy

Advocating for state policy change that benefits individuals with autism and their families

For decades, Autism Speaks has been a leader in advocating for state policy change that expands access to services and supports for people with autism and their families. We work with state legislators, agencies, regulators, coalition organizations and local advocates to pursue meaningful change.  

Former Georgia Governor Nathan Deal signing state autism insurance law with Ava Bullard, the child with autism after whom the bill is named

In the early 2000s, we began by launching a nationwide campaign to begin autism insurance reform in every state. This work involved thousands of partnerships as we ran statewide campaigns and activated advocates in-person and online to increase access and affordability of autism care. After achieving that goal, our focus shifted to address the remaining gaps in coverage of autism care and improve access to quality lifespan services – from IEP transition planning to home and community-based services (HCBS). 

With time, our advocacy efforts have evolved and diversified, now spanning the fields of healthcare, employment, education, financial planning, safety and law enforcement interactions, caregiver supports and more. The focus of our work at any one time depends on organizational capacity and resources as well as the political landscape in a given state. We take a targeted approach in pursuing policies that address the most critical needs of autistic individuals and consider the greatest state-specific needs throughout the country.

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Top state policy priorities

A young man stands in front of his new home, surrounded by his family, friends, and caregivers
Building capacity and improving quality of home and community-based services
two sheets of paper; top one is a title page saying "Health Insurance Benefits" and is covering most of the second paper which is a Health Insurance Claim Form
Closing gaps in public and private insurance coverage of meaningful care of autism therapies and services
a student wearing a backpack and walking through an aisle of the school library
Increasing school supports & increasing transition planning for adult services

Advocacy by state

Check out previous and current advocacy efforts in select states:

California | Florida | Illinois | Missouri | New York | Texas

Don’t see your state? Stay tuned for more updates!

State advocacy highlights

California state flag next to capitol dome
Governor Gavin Newsom recently signed several bills that Autism Speaks supported, which will strengthen supports for autistic students and help
Iowa Medicaid Director Elizabeth Matney holding clear puzzle piece award and standing next to Autism Speaks representative
Autism Speaks is pleased to recognize Iowa Medicaid Director Elizabeth Matney for her leadership of the Iowa Department of Human Services' redesign of
two hands typing on the keyboard of a laptop; stethoscope laying next to laptop
Over 55,000 Pennsylvanians with autism now benefit from additional state protections that address barriers to insurance coverage of autism care.